The Last Workout: 9 days

It was only 7 days ago that I met with my surgeon and decided the fate of my breasts. My surgeon is a woman, which makes me feel infinitely better about all of this. When they called with my diagnosis, I knew exactly what I was going to do. You see, when I met my biological mom 20 years ago and she told me what happened to her, I set my mind to survival. In an awful, and very real sense, I’ve been preparing since then. I was worried that a man doctor might try to convince me to save them.

You see, I’ve been reading real, actual science papers about this process. There are several papers with men as the lead author saying things like, “The number of women choosing a double mastectomy has increased by 400% since the early 80s.” I don’t remember exactly the numbers, but it’s a lot. And, do you know what was more upsetting to that lead, male author? That women, even when they knew they could get reconstruction immediately, were choosing not to. He was concerned, “maybe women don’t know they can have boobs again, right now!” WHY DON’T THEY WANT BOOBS!?!?! He vowed to make sure women were more educated about reconstruction options.

So. Again, I figured a woman would respect my choices more, not question me or try to persuade me.

Strangely enough, my doctor is also someone who goes to my gym. When she walked into the exam room, she was like, “you look familiar. do you work out?” All of this was comforting.

Did I mention what the girls did for the last time today? They went to the gym. They worked out in the same room as the woman who will cut them off in 9 days.

Though I normally don’t look into the mirrors when lifting weights, I did today. I stared at my cleavage (what little there is) and saw how awkwardly my sports bra was fitting. Another thing I was very aware of was how I had to tug at the shoulder straps after lifting, you know, to hoist them back up. There were times I did this with a laugh and other times with tears in my eyes. I won’t rave about Orange Theory, but I do enjoy it. What I hate is the stupid band I have to wear around my sternum. Of course, I could buy one that goes on my arm, but they’re 100 dollars. Fuck that. So, I bought the chest strap at a discount. Only once has it popped off from exertion. I usually tuck it under the band of bra so it feels more secure.

I wonder: what will this strap look like on my chest when it’s the only thing there? And another question: how long will it be before I feel comfortable not wearing a bra? I mean, I just cannot imagine a time when I have nothing between me and the world except a thin t-shirt. But, like, half of the population walks around like that all of the time. On one hand, it sounds very liberating. On the other, is there anything better than coming home and taking off your bra?

 

otf

It’s hard for me to comprehend what my body will feel like without them. It’s my understanding that in their place I will have a numb or tingly patch of scarred skin. There is a reconstruction called a DIEP flap which basically gives you a tummy tuck and adds boobs. Overall, it seems like a pretty good deal. But then, you have two areas of skin without feeling and a huge scar that crosses your stomach. I considered this for a hot minute, but, what’s the point of having boobs that feel nothing and an area of stomach that feels nothing?

Besides the sexual component of my breasts, which I’ll write about soon, there is one intimate detail I’ll tell you now. I love to sleep naked (though I haven’t in a long time with all the kids in the house). I love to sleep with a fan and the windows open. I love to feel the breeze on my skin when I’m warm in my bed. I don’t mean it in a sexy way. I know that’s a tiny, weird thing to think about, and it’s even weirder to share, but that’s the truth.

The next time I go to Orange Theory I’ll have no breasts, an awkward chest strap with nowhere to be tucked, and probably my surgeon on the treadmill next to me.

I wonder, though, this morning when we were running, rowing, and lifting, did she look across the room and feel sorry for me? Could she tell from knowing me only a few hours that I’m struggling? That, even though I know I’ve made the right choice, that I’m afraid of what happens when it’s all over?

That the uncertainty of how long it takes me to really heal is what scares me the most.

 

 

10 days left with the girls

It’s called Ductal Carcinoma In Situ. Some call it pre-cancer. It’s considered a Stage 0, like, the very, very beginning . In Situ means “in place.” (which I learned years ago while doing archaeology. If you find a cool artifact, you want it in situ so you can get the most information about it. Its integrity hasn’t been lost.) So, that means it hasn’t spread anywhere (most likely). That’s very good. It has a nuclear grade of 2 out of 3. That means it’s not the most aggressive, but it’s also not the least.  Treatment is a lumpectomy with radiation OR a mastectomy. Why am I choosing a mastectomy when I could keep my boob? Because radiation treatment is a daily thing for up to six weeks, it can shrink your breast, burn it, or, in very rare cases, go into your lungs, heart, or ribs. I’m not into all that mess. My cancer is only in one breast, so why get rid of both of them?  Because I don’t want to do this for the rest of my life, and at my age, and with my family history, my chances of getting cancer again, and even worse the next time is something like 40%.

I do have the option to reconstruct them, right now, but I don’t want to. The recovery is long and painful. And sometimes involves a lot more surgeries to make them look real and even and all of that.

I don’t have time for all that. I have rugby to play and a family to attend to. Also, graduate school.

I hope that answered most of your questions. Of course, there will be more detailed discussion of the choice to remove and not replace in the coming days and weeks.

Now, on to something more fun.

After a few days of feeling really sad for myself, I decided to try to make this fun, or at least, not awful. I’ve had to ask myself a lot of hard questions. One question that is the most difficult is this: What do you do with your breasts when you know they’ll be gone in 10 days?

So far I’ve:

  1. run up and down the steps without a bra and without holding them. Just to remember what that feels like.
  2. Stood naked in the mirror and touched them a lot. Maybe for the first time, admiring their beauty
  3. had to explore my own gender identity (but I’ll save that for another post)
  4. worn real bras and not just sports bras
  5. been much more aware of their presence. Like, I’m just really, really aware they exist.

Aside from all of the sad, selfish stuff I’m feeling about them, I promised them a farewell tour of some of their favorite things to do. I wanted to make their last days attached to my body fun for them, not all doom and gloom.

Yesterday they did this:

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They tried to take in a little sun, maybe for the first time. 

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They went on a nice hike with some friends

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They tried to make an imprint in the snow. 

Stay tuned for more adventures as the girls live out their last days on my chest.

Venmo: @molepoet

So you’re going to die.

One of my favorite episodes of the Simpsons is from season 2. As a family, they go out to eat sushi. Homer, ever hungry, is picky at first, but ends up eating everything on the menu. He orders Fugu, which is pufferfish. The story is, if it’s cut incorrectly, it’s poisonous. Since the head chef in is having sex with Mrs. Crabapple out in her car, the young chef cuts the pufferfish, we fear, incorrectly. Homer learns of this and heads to Dr. Hibbert, where he is handed the most wonderful pamphlet:

so die

So you're going to die

He’s told he has 24 hours before his heart explodes, so he makes a bucket list and tries to accomplish everything in a day.

Good news: Homer doesn’t die. He does, however, fall asleep in his arm chair while listening to Larry King read the bible on tape. In the morning Marge finds him looking dead, but she touches the warm drool from his lips exclaiming, “you’re alive!”

I cry every time I watch that episode.

The past few weeks have been sort of that way for me. I mean, in the sense that I feel like I just went to the doctor and she handed me a pamphlet with the bad news. Three weeks ago I had a mammogram. Then I had another. Then a biopsy. Then they called to say I have cancer, but the best kind. Then, Tuesday, I spent three hours weighing my options. My biological mother had breast cancer when she was 32 and my biological grandma when she was 70. There didn’t seem to be much of a choice.

In two more weeks, I’ll no longer have breasts.

And as quickly as you’ve read all that, that’s as quickly as it’s come at me.

I’m not telling you for your sympathy, or for you to feel sorry for the kids or Gaby. I’m telling you because, as has been my way, I’ve written to you about real life things in order to share with you, you know, real life shit. Until Cyrus was born so early, I never knew so many women struggled with miscarriages and still born babies. Until I wrote about sexual harassment happening to me, I never realized how many women it affected. I write about being queer a lot, and most of you say you’ve learned something. So, here I am telling you that I’m only 40 and I have cancer, and in a very short time, I will have no breasts and huge scars across my chest. That’s a lot to process in such a short time.

So, gentle readers, that is my news. Again, I tell you because I’ve always seen it as my job to write to you about the shit that happens in our lives that we are afraid to talk about. I’m sure you’ve all struggled with something, too. Something, maybe, you didn’t know others struggled with. Or something you know others struggle with, but you’re afraid to ask or talk about it.

I don’t expect you to tell me any intimate details of your lives. And, in a very real sense, this is none of your goddamn business. But I thought I’d share this fucked up journey because…why not? I’ve already told you almost everything else.

There will be a lot of thoughts coming on this topic including gory details and a VERY FUN farewell tour, but I don’t want to try to cram it all into one post.

 

 

 

 

 

 

Venmo: @molepoet

The Perfect Dish

Gaby’s love of food extends beyond the act of preparing it. Until her, I never really thought about how food is presented to someone to eat. I grew up in a household of corn mixed into mashed potatoes and gravy drenching everything. And though I do appreciate how food is plated now, I still don’t care. I just want to eat. But I do see the psychology  in making food look good in order to taste good.

Another thing I never really thought about until her is the art of food photography. It’s not just snapping a photo, straight on, of your dinner and posting to Instagram. Like any good photography, it’s about angles, light, and composition. A shitty photo of your dinner can make it look like garbage. Gaby’s really good at making amazing food look even more amazing. Just recently she bought a real camera and spends all of her free time practicing. If you don’t follow her already, I suggest you do in order to watch her already baller skills develop.

One of the benefits, I guess, of having her learn photography is her taking pictures of more than food. She’s snapped some great candids of friends. And, since I have a new essay coming out, I thought it was time to update my author photo. The last one was taken nearly 6 years ago. Six years ago I was in my early 30s; now I’m in my late 30s. That’s like a life time. Well, in preparation, and in an attempt to figure out lighting and the best time of day, she asked me one evening to sit just for fun. Since I was wearing a Christmas shirt and it was February, I took it off. And since I had just made myself a martini, I brought it with me. It was fun, or at least not horrible, and I actually liked one of the shots: Capture

This is an honest shot of me. This is my typical, non-smiling look. This is my sarcastic look. This is me, not really wearing clothes after I get home from work. My hair hadn’t been cut in over a year, and I figured out how to twist up my man bun. This, I thought, could be social media-worthy. I am not unattractive. There are things about me that people can appreciate. But then. I kept staring at myself. Like, one of those moments when you look in the mirror and you’re overcome with the thought, “I’m a human person. I am a mind inside a body. This is that body. This is what my shell looks like. Look at that face. I can make my face move like this…”  I used to go down that rabbit hole when I was teenager. I guess I had a lot of time on my hands. Or, I was a teenager. So, my 39 year old self looked deep into my own eyes for the first time in a while, and then this happened:

now this

I’d like to say at my age and with my life experience, this doesn’t happen to me. But it does. As much as I try to keep it from coming. I think we all do this. Or, if you don’t, please tell me how.

I see Erika, who is nearly 15, staring at herself in the bathroom mirror for way too long. I see her walk by her reflection in a window and pause to look at her hair, only to move one strand of curls back and forth for several minutes. I see her in the living room mirror adjusting her shirt around her waist and then turning around to pop her booty out and give it a hard look. I see her self-consciously moving through this world. I see her have the same anxiety we all have. Or the same anxiety I have which I assume everyone else has. We’ve talked about it. I try to tell her that I understand and that is gets better. Or we learn to turn down the volume of our inner critic. I think of this scene from Bojack Horseman.

I understand food seems to taste better when it’s expertly presented. When it’s an array of colors stacked to trick the eye into believing there is more there than in reality. Arranged to show only the best parts of each component. I suppose there are people like that, too. They know how to put themselves together.

I am not always this hard on myself. There are times I’m able to forgive myself for all the things I’ve done and move on. There are times when I’m positive that my friends like me and even care about me. There are times when I’m proud of all that I’ve lived through, when I know that I’m a good person, despite the bad things I’ve done to you all. To myself. There are times when I feel like I’ve really found myself and my truth and my wholeness and all of those things we are striving for. I can see those things in the martini photo. I can see a woman comfortable with all that she is. Sometimes I am her.

But, despite all the angles and light, I can also see that I’m not an elaborate, colorful, carefully constructed dish.

I am something like biscuits and gravy. I am either gross or delicious, depending on your tastes. Sometimes, I am way too much. I am best warm and terrible cold. Or I am something like a sloppy Joe: full of savory filling but just barely held together. If you put me down, I’ll fall apart.